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Archive for the ‘General’ Category

New Year’s Eve

This was taken New Year’s Eve in East Liberty. We sat around all day and decided we needed to get out of the house late afternoon. We took advantage of the gift card and went to Trader Joe’s because I drink decaf coffee and their French Roast decaf is the best. We added a few additional treats like the frozen chocolate croissants and fresh ravioli. I have been feeling pretty good since I have the chemo out of my system. I felt good enough to leave the house for a ride to the store which was refreshing even on this dreary winter day. Mike has a thing for some kind of bread he found at Whole Foods so we trekked up the street for that. When he has his mind set on good bread, look out. We drove home at dusk and the fog on the river was impressive to say the least. We spent a quiet evening in and fell asleep like only old, tired people do and the people up the street set off their fireworks at midnight so we woke up long enough to wish each other a Happy New Year and fell right back to sleep.

Wig shopping. Now there is something I thought I’d never be doing. At first we told Lisa the hair gal I was salt and pepper as I have never dyed my hair or used any product in it. So she brought out a wig that made me look like mama from the Carol Burnett show. Was it Mama’s Family? Well, that was a hoot and it was also when Mike, Patty and I decided I was still more brunette than salt and pepper. I opted for a bit longer style of “hair” and it looked nice at the salon but looked stupid when I got home. I think I’ll stick with wearing a turban or head wrap. I’m just more comfy bald than I am with this “hair.”

Well, the calendar has turned and while most folks look to the new year refreshed and with hope, I kind of am apprehensive as I don’t know what my future will hold. I guess really at the end of the day none of us do. I will just keep letting the system and the good Lord guide me along in this journey. I will try and be positive and hopeful until I know there is no reason to be either.

I am greeting each new day with gratitude for feeling good on the days that I do. Grateful for the caring friends and family that I know are thinking of me. I have now become their concern to a degree. If good vibes and prayers are answered in any form, I know I am in the best of hands with those around me. But, it is still my path to walk alone.

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True love is when your husband of forty one years shaves your head, kisses it and says ” you have a great lookin’ melon”.

I’m so lucky because I’m no beauty.

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Hair today gone today

well, this happened today. All of my hair fell out. This really brings home the gravity of my situation. I look like Larry Fine from The Three Stooges. This is surely a tough road to travel. I’m not sure I want to continue treatment because chemo was so grueling. I refused it yesterday and will chat with my doc on the 10th about how to or not to move forward. The question has become do I want a quantity of shitty days in bed like these past two weeks or a few good months of feeling normal knowing hospice will help me in the end. Many decisions have to be made.

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Listen

Check out this video on YouTube:

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Not counting any longer

this is a little fireplace my dad made me many years ago. The same flicker bulb still lights. I really miss my dad a lot.

My writing was way off this week because the chemo was so grueling.

I have a new chapter of my journey starting next week. I did quite a bit of meditation and soul searching and have come to meet my future standing on my own two feet. On my terms.

Today, I will be remembering the ghosts of all my Christmas’ pasts. There are many. Aunt Betty and Uncle Steve around the old upright piano at grandma Patrick’s house when I was a wee one. Christmas carols and drinks and laughter and fun. Yes, we were that family in the later fifties and early sixties!

The present ghosts are many. We still fill a room of thirty or so. Only now it’s a gift exchange and music that streams from a cloud! One must always have music!

As for the future. Not so sure where I will be fitting in that picture. Don’t worry, dear reader, if I’m not around around, trust me, I’ll be in everything you see.

Merry Christmas my loves.

My friends.

My family.

I may not see you every day, but know I have loved you from afar.

Alaways

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Day blah blah blah

Check out this video on YouTube:

Must post This Christmas Eve! This is our reminder. So beautiful it brings me to tears. How could I forget this, Still, Still, Still😢

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Monday’s chemo itself wasn’t a big deal. However, it was nine hours long and left me exhausted during the week. I’m bouncing back though. The hard part was wearing a chemo pump for two days which made restful sleep very hard. It was disconnected yesterday much to my relief! Today our blessed plumber came and hooked a hand held shower up. Yay! Small victories! I’ll take it. I’m feeling better and not quite as crappy as Tuesday and Wednesday, so I am a little behind in my daily journal. As always, dear reader, thank you for reading ❤️

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Day forty eight

Check out this video on YouTube:

I’m not out of time. This is just a great song. I’ll be back soon.

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Day forty seven chemo day

I am in my first round of chemo. It should be two hours long the. Another drug for two more hours. So far, it is uneventful. Port is working. Side effects if they hit won’t be until Thursday and meds are waiting.

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Forty seven continued

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